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  • WHAT WE DO
    At 4 months of age Sweet Ezra was diagnosed with Spinal Muscular Atrophy (SMA) Type I, a fatal disease with no cure. He died on February 5 2013. He was only 8 months old. Our hearts are broken. Our goal is to raise awareness and fight to find a cure for SMA. 1 in 40 people are carriers and one out of every 6000 babies is born with SMA. It is the #1 genetic killer of children under 2.   We appreciate your support in helping us reach our goal...
  • Upcoming Events
    Big news! We had previous mentioned that there will be a Wellness Day in August... this event has changed and we are excited to announce a wonderful new partnership...   As a way of giving back to the Hallowell community for the support and love we have felt, Hearts For Ezra will be sponsoring children's activities during the Old Hallowell Day Festivities!   http://oldhallowellday.org/   Come to VAUGHN FIELD on SATURDAY JULY 20th after the parade for FUN FOR ALL AGES!!! Bounce houses, arts and crafts, hula hoops, and other great surprises! More information to come... Hope to see you there!   If you are interested in volunteering for 2-3 hours on July 20, please email heartsforezra@gmail.com.  We're looking for volunteers to help run activities and games, arts and crafts, a bounce house, and more!  This is going to be fun for the whole family and we look forward to being a part of this wonderful Hallowell tradition. 
  • Donate
    Help us with our mission to raise awareness and help fight SMA.
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